Our Founding Family
Josh and Jenny created the Jewish SLC1A4 Initiative after their daughter Molly was diagnosed — determined to accelerate research so no family would face this alone.
Josh is Molly's father and a founding driver of the Jewish SLC1A4 Initiative. After Molly's diagnosis, he committed to advancing towards a treatment for SLC1A4. Josh is an emergency medicine physician.
Jenny is Molly's mother and co-founder of the Initiative. She has a PhD in education and has a background in strategic planning and Jewish initiatives.
Advisors
We are grateful to the researchers and clinicians who guide our scientific strategy and help connect the Initiative with the broader research community.
Dr. Chung discovered SLC1A4 Deficiency and the causative gene. She is the Chief of the Department of Pediatrics at Boston Children's Hospital.
Dr. Anderson is the Co-director of the Oxford-Harrington Rare Disease Centre.
Volunteers & Other Founders
The Initiative would not be possible without the dedicated volunteers and additional founders who give their time, skills, and passion to this cause.
Father of a child with SLC1A4 Deficiency and founder of Rare Alliance.
Want to Get Involved?
Whether you are a researcher, clinician, community leader, or simply someone who cares — there is a place for you in this effort.
Join the Initiative